Welcome to the Starlight Starbright family
section, where our families and children have written a
collection of touching and memorable stories, explaining
how our programs and services have touched their lives.
If you would like to comment on any of the
stories, or want more information on our programs and services,
please send a note to: laura@slsbcanada.org.
Have a story of your own to share? Click here
to tell us about it.
Learn more about becoming a part of the
Starlight Starbright extended family to make a difference
in the lives of seriously ill children and their families.
Visit our how
to help to find out the many ways you can get involved
with us -- from volunteering at a local Great Escape to
hosting a special event raising donations for Starlight
Starbright, there are countless ways to help make a difference.
To make a donation today, visit http://www.starlightcanada.org/donatenow.htm.
A Mother's Perspective
Up until a few years ago, my family was just
like any other family in your neighborhood. My husband and
I were both busy working professionals, and our children
were happy and healthy. My son Michael was an 8-year-old
little boy who loved to ride his bike, play video games,
and clown around with his older sisters Kathleen and Cynthia.
Then one day, our whole world was turned upside down. Michael
burst into my bedroom at 5 a.m., crying, clutching his chest
in pain and barely able to breathe. He was running a very
high fever and was in such serious distress that we rushed
him to the hospital. From that morning on life changed forever.
After many tests, x-rays, CT scans, and a
biopsy, Michael was diagnosed with a very rare, but deadly,
form of bone cancer. The doctors found a massive tumor that
was growing out of his rib, pushing against his lung and
liver and causing my little boy all that pain. I felt as
if I was going to die. As a health professional, I knew
immediately what Michael's prognosis was, and I knew that
it wasn't good. Emotionally I was a wreck. Our life became
a whirlwind of doctors, hospital rooms and medical treatments.
Michael had surgery to remove three of his ribs and part
of his lung. He endured ten months of grueling chemo - every
six weeks for three to six days at a time. Nausea, fatigue,
infections, pain, transfusions, and isolation were a regular
part of his world. At night, my mind would fill with unanswered
questions. While searching the Web for any bit of information
that might help, I found Starlight Starbright's Coping with
Chemo and devoured every bit of information about the disease
and its treatment... READ
MORE
-Judith Wong
Starlight Starbright Mother
In Their Words
Finding
Connection Through Starbright World: Being a teenager
in high school is never easy, but just think… if you had
an illness it is even more challenging. As a high school
senior living with muscular dystrophy, it is almost impossible.
One thing that helps me is an online social network for
seriously ill teens called Starbright World. I log on everyday
to talk to my friends from all over the world. We all have
different conditions, but everyone understands what it's
like to be sick and they don't make me feel bad for my illness.
Starbright World connects you to people who really care
about you.
-Starlight Starbright teenager
Ending
the Isolation of An Illness: I call Starlight Starbright
Children's Foundation my special place, because, through
Starlight Starbright's programs and special events, I can
meet other children who, just like me, suffer from a serious
illness. At Great Escapes, I've made many new friends with
kids who know what it is like to be painfully sick and we
have a chance to talk openly and not feel judged - they
like me for who I am. Starlight Starbright Children's Foundation
is so special to me because they have shown me that I am
not alone.
-Starlight Starbright child
Spending
Family Time Together: Starlight Starbright's programs
have been the most wonderful thing for my family because
we were able to spend quality time together -- just like
we once did before my daughter's illness. You brought back
a normal time to my family; after we have been through so
much it is hard to remember what normal once was. We have
been able to spend time together as a family and we feel
so supported. I personally thank you from the bottom of
my heart for the experiences that you bring!
-Starlight Starbright parent
Much
Needed Distraction: I was introduced to Starlight Starbright
Children's Foundation when, a few years back, I was admitted
to the hospital nine times. During these long hospital stays,
I used Starbright World on a daily basis, and it was through
this program that I was able to talk to other kids to help
make my visits more pleasurable. I took place in a live
chat with kids across the country and participated in an
essay contest about the NBA, in which I took second place!
Starlight Starbright helped me to cope with my illness,
and I want to thank you for providing programs that allow
more and more kids to have hospital stays that are less
stressful.
-Starlight Starbright child